Lyndsey Jackson – Electronic Frontiers Australia Promoting and protecting digital rights in Australia since 1994. Sun, 18 Feb 2018 01:47:39 +0000 en-AU hourly 1 FOI uncovers a three month window to opt out of the My Health Record Scheme - then what? Tue, 13 Feb 2018 01:24:55 +0000 Continue reading ]]> More concerns than answers have been raised over the Governments My Health Record Scheme after EFA board member Justin Warren made a request for access to the "Operational Blueprint" through the Right to Know FOI platform. In it's response to the request, the Government made the information public.

Unfortunately for your priavcy, detail is light on and the information raises more questions than it answers. 

Justin Warren said "EFA are concerned that we are less than four months from the start of the compulsory My Health Record scheme and we still don't have any information on how to opt out of the system. A system that was originally supposed to be opt-in and was changed to opt-out in complete disregard for the advice the government received from multiple parties."

"According to this information, the opt-out period will end a mere three months after starting. What then? How do people opt-out of the system after this period?"

"Agencies are quick to trot out the 'We take your privacy seriously' line at every opportunity. We say talk is cheap. Prove it."

EFA members also expressed frustration that the Department of Human Services has no information about an opt-out trial completed in 2016. And members have questions, a whole bunch of them, and they are questions that really need answering if Government are really taking the health information of an entire country seriously...

Member questions include (and are certainly not limited to):

Is the opt-out procedure going to be given any prominence other than on a buried government website? Any consumer advisories about this option? Will health practitioners be provided equal information about opting out as well as the faux benefits (lies) about the "service" (sic)? What is the budget for 'fair and balanced' information to the public about this option?

Is opting out like death -- forever? Or if someone wants to participate in the future, will that also be an option? What is the truth about a person's relationship to this faux "service" (sic)?

How can a system only be opt-out for 3 months when there are people joining the health system every day? This window is a stupid view of the public. We don't have a static population. You know. Migrants. New citizens. Real people who will arrive here after that ridiculous "window".

Have more questions? Comment below or on our twitter or facebook posts on the topic.

Text: Historical opt-out trial information An opt-out model of participation for the My Health Record system trialled in North Queensland and Nepean Blue Mountain regions. The trial was completed in 2016. We do not have information about the outcomes of the trial.

From the Department of Human Services website

Read the article from 12/2/18: How to opt out of Australia's e-health record scheme published on ITNews.

Read: Opt-out for My Health Record 011-04150000 information page

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ABC Radio Interview: Does technology knows you better than your family or friends? Mon, 12 Feb 2018 02:26:53 +0000 Continue reading ]]> EFA’s Chair Lyndsey Jackson spoke with ABC Radio’s Rod Quin and callers early Saturday (10/2/18) morning about the data we share and what it can reveal about us.

Increasingly people are discovering the impact and value of the information we give out.  Callers shared caution and distrust in the way data mining was building profiles of our lives and behaviour.

For EFA the radio interview presented a great opportunity to talk to people from a broad background. Ms Jackson reflected, “people are aware that private data has a value to business, and it’s an area that they want to know more about. We may not all understand all of the detail in how data matching and technologies work, but people are confident in talking about experiences where they see it touch their own lives and the stories and patterns people share”.

Listen to the ABC Overnights radio interview: Does technology knows you better than your family or friends?

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Human Rights Push into Digital Technology Mon, 12 Feb 2018 01:27:23 +0000 Continue reading ]]> A new project by the Australian Human Rights Commission puts the relationship between human rights and technology into focus.

Electronic Frontiers Australia welcomes this directive. EFA’s charter is the protecting and building awareness of civil liberties and ongoing campaigning of digital rights as a human right.

The opportunity that technology represents must be countered by the very real risks of the liberties and ways of life that could be given up. Technology moves fast, much faster than governments, regulators, and the community at large. This initiative is a positive sign that community standards and awareness is evolving and agencies and government must respond.

From the article:

“The aim of the project is to come up with ways that human rights can be prioritised in the design and regulation of new technologies.

The AHRC intends to hold a conference in the middle of the year that will bring together "leading thinkers, technology and human rights experts" to discuss the impact new technologies are having on human rights.

It will also publish an issues paper to kick off a consultation period in the middle of the year.”

Read the full article: Australian project to embed human rights in new technology via IT News online

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